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DISEASE RESEARCH

 

The following articles identify new advancements and promising
research regarding Niemann-Pick disease.

Clinical Trial of Cyclodextrin being Planned by NIH
The National Institutes of Health (NIH) is planning a clinical trial of cyclodextrin for use in patients with Niemann-Pick Disease Type C (NPC). For more information about this exciting research, visit the National Niemann-Pick Disease Foundation's cyclodextrin page at www.nnpdf.org/Cyclodextrin.html


NPC Clinical Trial Opportunity
Message from Dr. Forbes "Denny" Porter, National Institutes of Health.
The NNPDF has received an update from Dr. Denny Porter at the National Institutes of Health regarding an upcoming NPC Clinical Trial opportunity. Please click here to read Dr. Porter's message.

Researchers at the Washington University School of Medicine in St. Louis propose a new treatment approach for Niemann-Pick Disease http://mednews.wustl.edu/news/page/normal/10988.html

Year-1 results show that miglustat improves or stabilizes several clinically relevant markers of Niemann-Pick Type C http://www.medicalnewstoday.com/articles/80377.php

Evaluation of Biochemical Markers and Clinical Investigation of Niemann-Pick Disease, Type C http://clinicaltrials.gov/ct/show/NCT00344331?order=1

 

The Papier Family
Darrile, Dillon (NPC) and Mark


Research is the key to finding treatments for Dillon and all others affected by Niemann-Pick Disease Type C (NPC).

Thank you for joining us as we work to raise funding for NPC research!